- Title Information
- Title
- A community organizing approach to identify and address the barriers to healthcare for patients with X-linked systonia Parkinsonism (XDP) in Panay Island, Philippines
- Name:
Personal
- Name Part
- Solinap, Greta M.
- Role
- Role Term:
Text
- creator
- affiliation
- Massachusetts General Hospital
- Name:
Personal
- Name Part
- Aguil, Abegail
- Role
- Role Term:
Text
- creator
- affiliation
- Sunshine Care Foundation
- Name:
Personal
- Name Part
- Acuna, Patrick John B.
- Role
- Role Term:
Text
- creator
- affiliation
- Massachusetts General Hospital
- Name:
Personal
- Name Part
- Sharma, Nutan
- Role
- Role Term:
Text
- creator
- affiliation
- Massachusetts General Hospital
- Type of Resource
- text
- Genre (aat)
- posters
- Origin Information
- Date Created
(keyDate="yes", encoding="w3cdtf")
- 2016
- Language
- Language Term:
Code (ISO639-2B)
- eng
- Note
(displayLabel="Scholarly concentration")
- Non-Scholarly Concentrator
- Abstract
- X-linked dystonia Parkinsonism (XDP) is a rare movement disorder that occurs predominantly in men with ancestry to Panay Island, Philippines. In a local clinic in Capiz, a province in Panay, low attendance rates and few new patients posed a constant problem to health providers. To assess these barriers and improve care, researchers implemented a community organizing program where hired "community advocates" oversaw a group of XDP patients in the region where they live and conducted three community surveys (n=167). The major barriers to care for the patients were identified: lacking money for transportation (44%), rain and weather issues (24%), patient not feeling well enough to go (16%), no companion to accompany patient (8%), patient embarrassment (5%) and other reasons (3%). Clinic attendance increased by 36% in the first month and 18% in the next month after implementation of the program. The data suggest that clinic attendance can be improved by taking a community-based approach to addressing the major barriers to health.
- Subject (MESH)
- Topic
- Dystonic Disorders
- Subject (LCSH)
- Topic
- Parkinson's disease
- Access Condition:
use and reproduction
(href="https://creativecommons.org/licenses/by-nc-nd/4.0")
- This work is licensed under a
Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
License
- Access Condition:
logo
(href="https://licensebuttons.net/l/by-nc-nd/4.0/88x31.png")