<mods:mods xmlns:mods="http://www.loc.gov/mods/v3" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" ID="bdr697372" xsi:schemaLocation="http://www.loc.gov/mods/v3 http://www.loc.gov/mods/v3/mods-3-6.xsd">
   <mods:titleInfo>
      <mods:title>A community organizing approach to identify and address the barriers to healthcare for patients with X-linked systonia Parkinsonism (XDP) in Panay Island, Philippines</mods:title>
   </mods:titleInfo>
   <mods:name type="personal">
      <mods:namePart>Solinap, Greta M.</mods:namePart>
      <mods:role>
         <mods:roleTerm type="text">creator</mods:roleTerm>
      </mods:role>
      <mods:affiliation>Massachusetts General Hospital</mods:affiliation>
   </mods:name>
   <mods:name type="personal">
      <mods:namePart>Aguil, Abegail</mods:namePart>
      <mods:role>
         <mods:roleTerm type="text">creator</mods:roleTerm>
      </mods:role>
      <mods:affiliation>Sunshine Care Foundation</mods:affiliation>
   </mods:name>
   <mods:name type="personal">
      <mods:namePart>Acuna, Patrick John B.</mods:namePart>
      <mods:role>
         <mods:roleTerm type="text">creator</mods:roleTerm>
      </mods:role>
      <mods:affiliation>Massachusetts General Hospital</mods:affiliation>
   </mods:name>
   <mods:name type="personal">
      <mods:namePart>Sharma, Nutan</mods:namePart>
      <mods:role>
         <mods:roleTerm type="text">creator</mods:roleTerm>
      </mods:role>
      <mods:affiliation>Massachusetts General Hospital</mods:affiliation>
   </mods:name>

   <mods:typeOfResource>text</mods:typeOfResource>
   <mods:genre authority="aat">posters</mods:genre>
   <mods:originInfo>
      <mods:dateCreated keyDate="yes" encoding="w3cdtf">2016</mods:dateCreated>
   </mods:originInfo>
   <mods:language>
      <mods:languageTerm type="code" authority="iso639-2b">eng</mods:languageTerm>
   </mods:language>
   <mods:note displayLabel="Scholarly concentration">Non-Scholarly Concentrator</mods:note>
   <mods:abstract>X-linked dystonia Parkinsonism (XDP) is a rare movement disorder that occurs predominantly in men with ancestry to Panay Island, Philippines. In a local clinic in Capiz, a province in Panay, low attendance rates and few new patients posed a constant problem to health providers. To assess these barriers and improve care, researchers implemented a community organizing program where hired "community advocates" oversaw a group of XDP patients in the region where they live and conducted three community surveys (n=167). The major barriers to care for the patients were identified: lacking money for transportation (44%), rain and weather issues (24%), patient not feeling well enough to go (16%), no companion to accompany patient (8%), patient embarrassment (5%) and other reasons (3%). Clinic attendance increased by 36% in the first month and 18% in the next month after implementation of the program. The data suggest that clinic attendance can be improved by taking a community-based approach to addressing the major barriers to health.</mods:abstract>
   <mods:subject authority="mesh">
      <mods:topic>Dystonic Disorders</mods:topic>
   </mods:subject>

   <mods:subject authority="lcsh">
      <mods:topic>Parkinson's disease</mods:topic>
   </mods:subject>

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      Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
      License</mods:accessCondition>
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