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Year:: 2021
Contributor:: Rose Mahoney M2, Margaret Thorsen MD, Dayna Burrell MD, Carolyn Slack, Melissa Russo MD (Author); Brown University. Alpert Medical School. Scholarly Concentration Program. Women's Reproductive Health (research program)
Subject:: Genetics; Medical education; Prenatal care; Prenatal care--Study and teaching; Aneuploidy

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Abstract:: Nearly 4 million pregnant persons receive prenatal care in the United States annually, and current recommendations from the American College of Obstetricians and Gynecologists (AGOG) call for this care to include counseling on screening and diagnostic testing for aneuploidy. This is an incredible challenge for providers as the United States is facing a critical shortage of certified genetic counselors, and options for prenatal genetic testing have become increasingly complex. In fact, a study in 2016 that recorded over 200 patient encounters of prenatal genetic counseling, showed that only 1.5% of all providers covered ACOG’s recommended topics. A lack of standardized genetics curricula and reported discomfort providing genetic counseling serve as barriers to educating patients so that they may provide informed consent or refusal. This lack of standardization contributes to socioeconomic and racial disparities in prenatal genetics. Minority patients have a lower uptake of prenatal genetic screening, and studies have shown that this disparity in uptake correlates with lower rates of informed choice rather than negative attitudes about testing. To address this lack of standardized provider, and subsequent patient, education we sought to create a concise, accessible, and engaging video educational tool (VET) based on ACOG practice bulletins with resident physicians providing prenatal care as a target audience. In order to produce the most effective VET possible, input was sought from key stakeholders including clinical geneticists, maternal-fetal medicine physicians, resident physicians, genetic counselors, and medical educators. Video authors spent time participating in genetic counseling sessions to inform proposed counseling scripts, verbiage, and tone. A visually engaging storyboard was then created and underwent a series of iterative reviews by stakeholders. The final video was created using affordable cartoon software. We chose a cartoon style for this video in order to provide the option for easy editing if updates are made to ACOG recommendations, to ensure that characters of diverse ethnicities and backgrounds could be included, and for visual appeal. This video will be used for quality improvement of resident education surrounding prenatal genetics at Women and Infants Hospital along with a research project to assess knowledge of prenatal genetics, comfort with counseling, and perceived barriers to adequate counseling. We then plan to assess this video’s ability to affect those measures and will iteratively refine based on feedback from our peers. If found effective, we hope to disseminate this video widely.
Notes:: Scholarly concentration: Women's Reproductive Health

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Use and Reproduction: All rights reserved
Rights: In Copyright
Restrictions on Use: All Rights Reserved

Citation

Rose Mahoney M2, Margaret Thorsen MD, Dayna Burrell MD, Carolyn Slack, Melissa Russo MD, "Development of a Video Educational Tool for Prenatal Care Providers: A Framework for Counseling and Promoting Patient-Empowered Decision-Making Surrounding Prenatal Genetic Testing" (2021). Warren Alpert Medical School Academic Symposium. Brown Digital Repository. Brown University Library. https://repository.library.brown.edu/studio/item/bdr:47haxj6y/

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Warren Alpert Medical School Academic Symposium

The Warren Alpert Medical School Academic Symposium is an annual event at Warren Alpert Medical School of Brown University that provides Year II medical students a venue to present their summer research in a poster format. Participation in the Symposium …
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Development of a Video Educational Tool for Prenatal Care Providers: A Framework for Counseling and Promoting Patient-Empowered Decision-Making Surrounding Prenatal Genetic Testing