Description
- Abstract:
- Patient advocacy organizations (PAOs) are nonprofits dedicated to benefiting patients and their families through activities such as education/counseling and research funding. Although medical drug/device companies may serve as important partners, industry donations may bias the efforts of PAOs. We conducted a retrospective cross-sectional analysis of the Kaiser Health News nonprofit database to identify and characterize otolaryngologic PAOs (n=32) active in 2016. Among these PAOs, half (n=16; 50.0%) focused on otologic diseases and mean total annual revenue was $3.1 million. Among the 15 PAOs (46.9%) with publicly available donor lists, 10 (66.7%) received donations from industry. Few PAOs publicly reported the total amount donated by industry (n=3 of 32; 9.4%) or published policies for mitigating potential financial conflicts of interest with donors (n=3 of 32; 9.4%). Requiring drug and device companies to publicly report donations to PAOs may help patients, providers, and policymakers to better understand advocacy by these influential stakeholders.
- Notes:
- Scholarly concentration: Non-Scholarly Concentrator
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- Use and Reproduction
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Citation
Kondamuri, Neil S; Rathi, Vinay K; Naunheim, Matthew R; Sethi, Rosh V; Miller, Ashley L; Varvares, Mark A.,
"Analysis of Potential Conflicts of Interest Among Otolaryngologic Patient Advocacy Organizations in 2016"
(2019).
Warren Alpert Medical School Academic Symposium.
Brown Digital Repository. Brown University Library.
https://repository.library.brown.edu/studio/item/bdr:957195/
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Warren Alpert Medical School Academic Symposium
The Warren Alpert Medical School Academic Symposium is an annual event at Warren Alpert Medical School of Brown University that provides Year II medical students a venue to present their summer research in a poster format. Participation in the Symposium …...