Description
- Abstract:
- X-linked dystonia Parkinsonism (XDP) is a rare movement disorder that occurs predominantly in men with ancestry to Panay Island, Philippines. In a local clinic in Capiz, a province in Panay, low attendance rates and few new patients posed a constant problem to health providers. To assess these barriers and improve care, researchers implemented a community organizing program where hired "community advocates" oversaw a group of XDP patients in the region where they live and conducted three community surveys (n=167). The major barriers to care for the patients were identified: lacking money for transportation (44%), rain and weather issues (24%), patient not feeling well enough to go (16%), no companion to accompany patient (8%), patient embarrassment (5%) and other reasons (3%). Clinic attendance increased by 36% in the first month and 18% in the next month after implementation of the program. The data suggest that clinic attendance can be improved by taking a community-based approach to addressing the major barriers to health.
- Notes:
- Scholarly concentration: Non-Scholarly Concentrator
Access Conditions
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- This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
Citation
Solinap, Greta M., Aguil, Abegail, Acuna, Patrick John B., et al.,
"A community organizing approach to identify and address the barriers to healthcare for patients with X-linked systonia Parkinsonism (XDP) in Panay Island, Philippines"
(2016).
Warren Alpert Medical School Academic Symposium.
Brown Digital Repository. Brown University Library.
https://repository.library.brown.edu/studio/item/bdr:697372/
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Warren Alpert Medical School Academic Symposium
The Warren Alpert Medical School Academic Symposium is an annual event at Warren Alpert Medical School of Brown University that provides Year II medical students a venue to present their summer research in a poster format. Participation in the Symposium …...